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Have Heart for Marfan Walk/Fun Run

in United States at Great Southern Bank, 1290 Copper Creek Drive

Online registration for this event is closed.


  • 10K Run

    Online registration is closed for this category.



  • 5K Run

    Online registration is closed for this category.



  • 2K Walk

    Online registration is closed for this category.



  • Youth 2K Fun Run (13 and under)

    Online registration is closed for this category.



  • Youth Trot (8 and under)

    Online registration is closed for this category.




Start and Finish

Great Southern Bank
1290 Copper Creek Drive
Pleasant Hill, IA

Course loops around Copper Creek and continues along the bike trail.

Parking will be available at Copper Creek Plaza Parking Lot.

Timing

By True Time Racing Services

Course Map:
[img]http://static.getmeregistered.com/events/8441/untitled.JPG[/img]

Event Times

8:00 AM: 5K and 10K Runs
8:05 AM: 2K Youth Fun Run (13 and under)
8:10 AM: 2K Walk
9:00 AM: Youth Trot (8 and under)
7:30-9:00 AM: Kids' Events
9:15 AM: Awards Ceremony

Awards

5K and 10K Fun Runs: Awards to top overall man and woman 5K and 10K and 1st, 2nd, and 3rd place for women and men in the following age divisions: 14-16, 17-19, 20-29, 30-39, 40-49, 50-59, 60-69, 70+

2K Youth Fun Run: For youth 13 years and younger. Awards to top three males and females.

Youth Trot: 100-yard dash for children 8 years and younger. Ribbons to all participants!

About Marfan Syndrome

Marfan syndrome is a genetic disorder that affects the body's connective tissue. Connective tissue hols all the body's cells, organs and tissue together. It also plans an important role in helping the body grow and develop properly.

Because connective tissue is found throughout the body, Marfan syndrome can affect many different parts of the body, as well. Features of the disorder are most often found in the heart, blood vessels, bones, joints, and eyes. Some Marfan features - for example, aortic enlargement (expansion of the main blood vessel that carries blood away from the heart to the rest of the body) - can be life-threatening. The lungs, skin and nervous system may also be affected. Marfan syndrome does not affect intelligence.

About 1 in 5,000 people have Marfan syndrome, including men and women of all races and ethnic groups. About 3 out of 4 people with Marfan syndrome inherit it, meaning they get the genetic mutation from a parent who has it. But some people with Marfan syndrome are the first in their family to have it; when this happens it is called a spontaneous mutation. There is a 50 percent chance that a person with Marfan syndrome will pass along the genetic mutation each time they have a child.

People with Marfan syndrome are born with it, but features of the disorder are not always present right away. Some people have a lot of Marfan features at birth or as young children - including serous conditions like aortic enlargement. Others have fewer features when they are young and don't develop aortic enlargements or other signs of Marfan syndrome until they are adults. Some features of Marfan syndrome, like those affecting the heart and blood vessels, bones or joints, can get worse over time.

This makes it very important for people with Marfan syndrome and related disorders to receive accurate, early diagnosis and treatment. Without it, they can be at risk for potentially life-threatening complications. The earlier some treatments are started, the better the outcomes are likely to be.

Knowing the signs of Marfan syndrome can save lives. Our community of experts estimates that nearly half the people who have Marfan syndrome don't know it. This is something we are working hard to change.

Learn more about the signs of Marfan syndrome at www.marfan.org

The Marfan Foundation and Heart of Iowa Chapter

The Marfan Foudnation and Heart of Iowa Chapter create a brighter future for everyone affected by Marfan syndrome and related disorders. They work tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness.

Learn more and get involved at www.marfan.org and www.heartofiowa.org


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